Stick.


Confession: I will probably stick to those clicker lancets, because frankly even they make me jumpy. I recoil at standard lancets. It’s the visible needle. I have this thing with needles. If I can’t see the needle, I’m ok, but if I can see it then good luck.

I specifically ask doctors and med techs to not let me see the needles when there is a needle necessary. Of course, there’s a weird thing where I can taste some needles when they go in. (I can’t explain it, it’s always been a thing.)

Though I’m not diabetic or prediabetic, a work doctor a while back advised me to keep track of my blood sugar, after I had a hypoglycemic event in the office. It was confirmed by my doctor later on: I have nonreactive hypoglycemia.

Confounding Factor: My meds spike my levels artificially. So I have to keep an eye on THAT. The same meds also crash it.

So, at different times of the day, I have to determine if my malaise is general fatigue, the fibro, or if my blood sugar has just cratered. Usually it’s a combination of the second two and a cup of sugar coffee and an apple fixes things.

But first, I have to brace for that little stick…

Well, I’m not dead

I wouldn’t turn down money though lol.
It’s  been hectic. Got rid of the bugs. My Outlook account is buggin’.
My doctor discontinued my gut medicine and it’s like $70/month for a month’s supply if he doesn’t fix it.
There is still a gaping gouge in my ceiling.
I dislocated my knee seven times last month. The good knee.
But I’m going to try to write again. I fell into this…hole, and I wasn’t writing. I haven’t been able to get it going. But I’m going to do it. I’m going to push forward and write again. Cooking, photography, and writing are the things that make me happy, and I haven’t been doing any of them. But I’m going to change that starting now.
It’s time to get moving.


…ps, if you want to feed the starving artist, feel free to toss a few at. $20 feeds me for a week with this injured esophagus.

Undiagnosed but Clear. 

Today, I read an article on the pain of fibromyalgia that I could have written myself. I knew the back pains, the jaw pains. I knew the truly bizarre things the muscles do. I knew the feeling of having had my body’s muscles go through a meat grinder, get salted, and then shoved back in as if they were supposed to be useful again.

I recognized the tales of budgeting against the next day if a work day was horrid. I saw myself in the stories of struggling to get a position that wasn’t approximately “wail like hit dog.”

I muttered, “This is a thing” on reading about fatigue attacks. It was both validation and horror.

I saw way too much of me in the stories about the head fog. I was actually coming out one when I began this entry. What did I fog on, you ask? WHERE I WAS. I didn’t know where I was.

Reading about budgeting leisure time, the feeling that friends may think one is dodging them, really hit. But how do you socialize when you cannot even roll over without making a noise that makes a cat’s mothering instincts go off? (It’s really sad when you know which meow is the “are you ok” meow for more than one cat…)

I tried to find the article again and couldn’t. I’m putting it off to fog, but I have concerns about it. I know it existed—there was an illustration that very vividly described my pain in it that stuck with me. I was going to use the article to show my doctor we need to rethink my pain treatment, that this most likely the Big F—Fibromyalgia. But he’s not the best listener, and the only response I got from my message was a (probably needed) doubling of a medicine usually prescribed for it. But he stops short of a diagnosis.

Right now I just want to rest. I’m not even interested in food. Only rest.

Cluster headache? Meet Zappy. 

I don’t know what this brain symbol means but boy howdy is this setting doing wonders on my pain. 
Today, I tried doing research on TENS machines and chronic pain. I could barely find anything newer than ten years ago, and a lot of it was speculation. It’s like they haven’t been doing any research at all. Maybe they haven’t. 
I can believe that. 
But what I know is that during physical therapy for my crap knee, I was connected to one of those giant versions of these for a different purpose — trying to get the muscles to get active and stop this silly wasting nonsense they’ve developed (they have not; I’m on a specific diet to help that now). Instead I got intense pain relief. So I got my own secondhand device. And now, this one. 
I’ve heard things like “the jury is still out,” or “we don’t know,” and even “that’s dangerous outside of the hospital.” It was actually the hospital that recommended this, when they saw this worked better than the NSAID that I was on a stomach-melting dose of. 
Today, instead of a recalcitrant leg, I’ve got electrodes glued to my face, fighting a cluster headache. It comes back on a schedule, but this keeps it back from rendering me nonfunctional — ridiculous though I may look. The machine is small but mighty. I would love to see more science, because I like knowing how cool things like this work. 
Right now though, I gotta reset my timer and intensity. I like not having a headache. 

Too early… 

Pain, Fever Dream…


It’s 3:10 AM. I lay down in the evening thinking that I was going to be out a mere half hour but the next thing I knew I’m waking up to the same pain I fell asleep to. I’ve slept through my meds, and the only reason my temperature is as low as it is sits in my grade fridge—a high quinine rasberry-cranberry tonic water I mixed myself.

…different reason. I like the bitter bite of tonic.

I woke with pain a few hits minutes ago. My pills are hours late.

I hope I don’t oversleep…

Herded By Cats

It appears to be a bad fatigue day. No pain threshold and my pills hit like a truck.

Also, every kitten has mom-meowed at me every time I’ve attempted to stand up and doesn’t let up until I give them an “I know, thanks” and a head scritch.

The “mom-meow” is an interesting thing. It seems to be the way a cat says “?” to humans. (No, seriously, the only way to describe this particular meow is a loud “?”) It comes with an obvious look of concern and is often followed by an “I need nothing but I’m going to follow you until I notice you aren’t trying to overdo it and are safely seated OK no questions” tailing. Ignore it and one is herded elsewhere by attempted group legtangling.

…This is the time for “in Soviet Russia, Cats herd you” jokes. Even though we can’t herd them.

They’re that good at this.

Well, staying down beats back/ab/quad spasms, so…

Grocery day is a very dangerous day

image

About a week of groceries there. There is not much variety today. Or much there at all really. The tear in my abdominal wall muscles keeps me from carrying much, as well as from eating much—if my stomach is close to half full that part of my body is nothing but pain.

So dinner is a single bologna sandwich, made with the cheapest brand I’ve ever seen, praying that “flavorings” on the ingredients list doesn’t involve anything related to juniper.

The pain in my side is about the worst it’s been in a while… And the worst part about it was that it decided to kick in at the store. An impulsive decision to use a European style shopping cart paid off when I used it to keep from hitting the floor.

I should have got a motor cart was my first thought. The second was blinding panic. You know, the usual. Is this that bad this can’t be that bad SUCK IT UP MOTHERFUCKER

The aisle goes Laser Floyd. Muscle spasms in the area force me back onto the cart.

Is this it? Am I DISABLED?

It took a lot of good Samaritans to get me home today. The groceries were put away, only mildly smashed—the bread may reinflate from where I landed on it—and I was finally able to rest.

I’m not sure what I’m supposed to do. This is the kind of injury that I’m not supposed to do the things that are in my line of work. But if I don’t, bills and rent…don’t. If I keep working, I could really wreck my body… Well, worse.

…I think I’m gonna sleep now. I really can’t see straight from this pain anyways.