Ten godsdamned hours in that forsaken hotel.
My fibro picked today to assert itself over my body, remind me that it is a broken machine. Things burn, sting, and throb—some all at once. My head hurts, feeling like it has been inflated wrong.
… heads shouldn’t be inflated at all though, should they…
I plan on collapsing into bed when I get there. I’m in too much pain to eat. The only reason I am able to function at all right now is that I had my dear sweet Zappy—you know, my tens unit—in my bag. Enough muscles have been zapped into painlessness that I was able to get into the bus and train.
But I still won’t be home until ten thirty. An hour from right now.
And tomorrow is going to suck. I’m definitely in trouble with the boss. My only comfort is that I am not the only one in trouble.
… time to wait for another bus.
The sudden call from the gastroenterologist was…less than welcome. That bill hanging over my head makes me more than a little nervous. I do not need my treatment cut off. So I impulsively, panickedly, set up a payment plan using money that I may not actually have. The impulse was not all folly–it was set something up or it goes into collection, my account goes into bad standing, and my health…I don’t want to think about it. I’ll take any help I can get.
I have a good feeling my money for payday is already spent, throwing the idea that I had for a business venture out the window.
Speaking of the window, there go the gunshots, and my meds are kicking in. Despite the terror that is the rent and this bill, I’ll sleep deep.
Confession: I will probably stick to those clicker lancets, because frankly even they make me jumpy. I recoil at standard lancets. It’s the visible needle. I have this thing with needles. If I can’t see the needle, I’m ok, but if I can see it then good luck.
I specifically ask doctors and med techs to not let me see the needles when there is a needle necessary. Of course, there’s a weird thing where I can taste some needles when they go in. (I can’t explain it, it’s always been a thing.)
Though I’m not diabetic or prediabetic, a work doctor a while back advised me to keep track of my blood sugar, after I had a hypoglycemic event in the office. It was confirmed by my doctor later on: I have nonreactive hypoglycemia.
Confounding Factor: My meds spike my levels artificially. So I have to keep an eye on THAT. The same meds also crash it.
So, at different times of the day, I have to determine if my malaise is general fatigue, the fibro, or if my blood sugar has just cratered. Usually it’s a combination of the second two and a cup of sugar coffee and an apple fixes things.
But first, I have to brace for that little stick…
I wouldn’t turn down money though lol.
It’s been hectic. Got rid of the bugs. My Outlook account is buggin’.
My doctor discontinued my gut medicine and it’s like $70/month for a month’s supply if he doesn’t fix it.
There is still a gaping gouge in my ceiling.
I dislocated my knee seven times last month. The good knee.
But I’m going to try to write again. I fell into this…hole, and I wasn’t writing. I haven’t been able to get it going. But I’m going to do it. I’m going to push forward and write again. Cooking, photography, and writing are the things that make me happy, and I haven’t been doing any of them. But I’m going to change that starting now.
It’s time to get moving.
…ps, if you want to feed the starving artist
, feel free to toss a few at. $20 feeds me for a week with this injured esophagus.
For the past few days—probably because it’s been close to the anniversary of the dumpage—my ex has been on my mind.
Don’t worry, I’m OK, nothing drastic is about to happen nor is it in any way shape or form risky. What’s been on my mind are the things about me that probably would have gotten me out of the “relationship” even without the circumstances that there were.
Today, I read an article on the pain of fibromyalgia that I could have written myself. I knew the back pains, the jaw pains. I knew the truly bizarre things the muscles do. I knew the feeling of having had my body’s muscles go through a meat grinder, get salted, and then shoved back in as if they were supposed to be useful again.
I recognized the tales of budgeting against the next day if a work day was horrid. I saw myself in the stories of struggling to get a position that wasn’t approximately “wail like hit dog.”
I muttered, “This is a thing” on reading about fatigue attacks. It was both validation and horror.
I saw way too much of me in the stories about the head fog. I was actually coming out one when I began this entry. What did I fog on, you ask? WHERE I WAS. I didn’t know where I was.
Reading about budgeting leisure time, the feeling that friends may think one is dodging them, really hit. But how do you socialize when you cannot even roll over without making a noise that makes a cat’s mothering instincts go off? (It’s really sad when you know which meow is the “are you ok” meow for more than one cat…)
I tried to find the article again and couldn’t. I’m putting it off to fog, but I have concerns about it. I know it existed—there was an illustration that very vividly described my pain in it that stuck with me. I was going to use the article to show my doctor we need to rethink my pain treatment, that this most likely the Big F—Fibromyalgia. But he’s not the best listener, and the only response I got from my message was a (probably needed) doubling of a medicine usually prescribed for it. But he stops short of a diagnosis.
Right now I just want to rest. I’m not even interested in food. Only rest.
This is my Confession 2: Comforts.
There are things I will compromise on, but in the winter there is one thing I will not compromise on, and that is the chance to have at least one nog on the rocks.
No rum. There is only one kind of rum I liked and all I can remember is that it was kind of weak.
I’m not supposed to be consuming alcoholic things right now, anyway.
This is my brand. I’m going to enjoy it while I can.
A nog on the rocks a night. A nice thing I can have at night… With a digestive aid of course. This isn’t lactose free.